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Narcolepsy news

Living With Narcolepsy


Huffington Post - Nov 30, 2016
Once I was diagnosed with narcolepsy, the relief and joy that I felt was indescribable. I was instantly set up with some of the best pediatric sleep doctors in my area, who started me on many strong medications such as Ritalin, Effexor, Imipramine ...
 

Xyrem campaign from under-fire Jazz keeps narcolepsy awareness at the fore


FiercePharma - Nov 28, 2016
Jazz Pharmaceuticals' narcolepsy disease awareness campaign recently got a renewed push. The company, as part of its "More than Tired" campaign, reaired its TV spot before the U.S. presidential election, although as Newsweek commented postelection in ...
 

Jazz Completes Patient Enrollment in JZP-110 Narcolepsy Trial


Zacks.com - Nov 29, 2016
The phase III narcolepsy study is a double-blind, placebo-controlled, multiple-center study, which enrolled 240 patients. The Maintenance of Wakefulness Test and the Epworth Sleepiness Scale were the co-primary endpoints. These measure the patient's ...
 

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NEW Narcolepsy and Hypersomnia (Lung Biology in Health and Disease)


 

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Narcolepsy books

The Extraordinary Education of Nicholas Benedict


by: Trenton Lee Stewart
Before there was a Mysterious Benedict Society, there was simply a boy named Nicholas Benedict. Meet the boy who started it all....
Nine-year-old Nicholas Benedict has more problems than most children his age. Not only is he an orphan with an unfortunate nose, but also he has narcolepsy, a condition that gives him terrible nightmares and makes him fall asleep at the worst possible moments. Now he's sent to a new orphanage, where he encounters vicious bullies, selfish adults, strange circumstances -- and a mystery that could change his life forever.
>> More info on Amazon

Wide Awake and Dreaming: A Memoir of Narcolepsy


by: Julie Flygare
Julie Flygare was on an ambitious path to success, entering law school at age 22, when narcolepsy destroyed the neurological boundaries between dreaming and reality in her brain. She faced terrifying hallucinations, paralysis and excruciating sleepiness aspects of dream sleep taking place while wide awake. Yet, narcolepsy was a wake-up call for Julie. Her illness propelled her onto a journey she never imagined from lying paralyzed on her apartment floor to dancing euphorically at a nightclub; from the classrooms of Harvard Medical School to the start line of the Boston Marathon.
>> More info on Amazon

The Monster on the Road Is Me


by: JP Romney

It starts with the crows. When you see them, you know he’s found you.

Koda Okita is a high school student in modern-day Japan who isn’t very popular. He suffers from narcolepsy and has to wear a watermelon-sized helmet to protect his head in case he falls. But Koda couldn’t care less about his low social standing. He is content with taking long bike rides and hanging out in the convenience store parking lot with his school-dropout friend, Haru.

But when a rash of puzzling deaths sweeps his school, Koda discovers that his narcoleptic naps allow him to steal the thoughts of nearby supernatural beings.
>> More info on Amazon

Narcolepsy: A Funny Disorder That's No Laughing Matter


by: Marguerite J. Utley
This book provides accurate facts about all aspects of narcolepsy, a little-known neurological sleep disorder. It is estimated that 150,000-250,000 people in the U.S. have narcolepsy, but most of those have not yet been diagnosed. In the past, patients have seen an average of five or more physicians over a decade or longer before receiving a correct diagnosis of narcolepsy. As the public becomes better informed and more doctors are entering the field of sleep medicine, people are being diagnosed quicker and at an easlier age.
>> More info on Amazon

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Narcolepsy videos

Sleepy Man : Dee Daud - National Geographic Narcolepsy


Sleepy Man - National Geographic Narcolepsy - Dee Daud Dee Daud suffring from Narcolepsy, sleeps more than 18hours a day. Narcolepsy: Described as a ...
 

Diagnosing Narcolepsy


In this video, Dr. Kiran Maski, Instructor of Neurology at Harvard Medical School and a Pediatric Sleep Medicine specialist, and a young patient with narcolepsy ...
 

What is Narcolepsy?


Dr. Tom Scammell, Professor of Neurology at Harvard Medical School and a Sleep Medicine specialist provides an overview of narcolepsy. He discusses the ...
 

Narcolepsy - causes, symptoms, diagnosis, treatment & pathology


What is narcolepsy? Narcolepsy's a type of sleep disorder where somebody becomes unable to properly regulate their sleep-wake cycles. Subscribe ...
 

Living with Narcolepsy


This video is a roundtable discussion amongst persons with narcolepsy and some of their family members. It provides insights about how persons are affected ...